Oct 05

This weekend, I’ll be going to Atlanta with the grassroots, non-violent, direct action group ADAPT to work toward ending the institutional bias in the United States long term care system.  “Institutional bias” is a term developed by disability activists to describe the unchallenged, irrational preference given by the federal government for funding the care of people with disabilities of all ages in institutions like nursing homes rather in the community with their families.

I will be blogging live from the action every day, so check philosophercrip.com often for my personal stories and reflections.  This will be part of a larger blogswarm effort being organized by my friend Nick Dupree over at http://www.nickscrusade.org.  For a preview of why we are headed to Georgia specifically, read http://www.adapt.org/atlanta2009.php.  Finally, for real time updates about the action as it unfolds, check out MIADAPT and NationalADAPT on Twitter.

Let’s FREE OUR PEOPLE NOW!!!!

Orange is the color of Community Choice!

Orange is the color of Community Choice!

Mar 19

It’s rare that I re-post other people’s writing on my blog. This is mostly because I see this blog as a way to “test out” ideas that I have been playing with but don’t really have another home to inhabit. However, a friend, fellow little person, and philosopher in his own right, Bill Bradford, recently wrote an op-ed for his university newspaper that was both emotionally moving and rigorously argued. This is a rare combination, so I am sharing it with others. Here is a link and a taste:
Column: Failed health care policies become death sentence

“George W. Bush killed my brother. Okay, admittedly that was a stretch. A more likely culprit is a combination of the failed policies of the Republican Party, the spinelessness of the Democratic Party and some bad choices my brother was forced to make in his life…”

Sep 30

Both presidential candidates seem to have suddenly become populists with the closing of a few investment banks.  We are hearing about the tensions between Main Street and Wall Street and the tax squeeze on the middle class, who also wants to be bailed out.

Now, no doubt folks will suffer as our economy begins a tail spin and I certainly don’t want to come off as insensitive to that in any way.  As long as my grades stay up and I don’t have an affair with any of my students, my income is pretty much secure for the next few years, but this news terrifies me when I think of what it could mean for some of my family members.  I am not going to go into any of those details because it is their personal business, but the possibilities of a second great depression really make my stomach tighten into knots when i think about what it could do to some of those i love most.

With that said, I’m wondering if this economic crisis may not be ENTIRELY bad for everyone.  The logic of these situations usually means that when the economy is squeezed, the poorest class suffers most.  Tax payers earn less and pay less.  Trickle down economics ideology means that taxes are cut for the point of the socio-economic pyramid, so that the pump of investment will be primed.  This also means that social programs are cut back and public entitlement systems start trying everything they can to exclude folks from them.

This is what happens in a recession when times are tough.  Now, I wonder what would happen in a true economic meltdown?  I am not an economist by ANY stretch of the imagination, but I wonder if it may actually HELP the poorest of the poor, by giving them some company.  Wasn’t it the Great Depression that birthed the New Deal?  Couldn’t a NewER Deal eventually result from a second crisis, when the government is (hypotheically) forced to face the fact that millions (more) of folks are living in poverty and doing favors for the ultra-rich isn’t going to ever “trickle down” as investment is shipped over seas?  Would this result in a truly progressive tax code like exists in Europe?  Could this be how we get universal health care and solide retirement benefits?  What about more low income housing of better quality?

Of course, a disproportionate number of crips live in extreme poverty and lack housing.  If these sweeping changes do start to happen, it is going to be essential that we jump on this opportunity to be sure that universal health care includes choice in how/where long term care is delivered and that new low income housing is accessible and integrated in the community.

I don’t HOPE for a true economic crisis, because it may turn out to be a very dark chapter in history (remember, in the 30s we got FDR’s new deal as the solution to economic crisis, but the Germans got Hitler’s holocaust).  However, I wonder if there may be a small kernel of hope amidst the fear, for those who are most marginalized by the systems we have in place right now.

Aug 29

With the fierce primary battle between Barack Obama and Hillary Clinton and today’s announcement of McCain’s running mate Sarah Palin, this presidential election has been and will continue to be thick with identity politics. That is, individual members of historically marginalized groups are finally at the point of sharing real power in our country and other members of those same groups are taking notice and often voting according to that shared identity. Being a member of a marginalized group, I can appreciate the desire to vote according to that identity.

I absolutely believe that other folks with highly visible physical differences (like my dwarfism) and mobility disabilities (like my use of a power chair) understand a part of “what it’s like to be me” in ways that an able bodied person never could. Close friends and family have a strong sense of empathy and do feel my outrage or pain when they are present as I am being marginalized or ridiculed, but they do not know what it’s like to live every moment of your life with such marginalization or ridicule right around the corner. For those that are close to me, their empathetic suffering is a temporary condition.

So it is that I understand that even complete strangers who are genuine members of a marginalized group can profoundly and uniquely understand each other’s lived experience in some ways (but CERTAINLY not all ways). Because of this feeling that other members of our group “get it” just because they share this identity, it’s easy to want to support them in their political ambitions. We trust people like ourselves more easily and we see their success as intimately bound up with our success. That is why people of color and women came out in droves this year to support Barack and Hillary, respectively.

However, if we were to practice identity politics in a completely uncritical way, we run the risk of tokenizing ourselves. In fact, I believe this trap is what John McCain is betting on in choosing a female Veep today.

When someone is tokenized, they are deliberately placed in a social or political position that gives the appearance of inclusiveness. In other words, it is a dominant group’s attempt to satiate a subjugated group by throwing them a bone. A tokenized person with a disability in a mainstream classroom provides ammunition for a school board to claim that they are not discriminatory by segregating everyone else in a “special” education back room, “But look! We are inclusive where that kind of thing is appropriate!”

As voters, if we vote for someone just because they superficially share our marginalized identity, even if they support policies that strike directly against our interests, we tokenize that candidate. Sarah Palin has the biology of a woman, but the troubling brand of fiercely conservative politics that she shares with John McCain does nothing to help the ordinary working class American woman, who is trying to make good amidst a foreign and domestic crisis. Conservatism does nothing but preserve the status quo, which is largely a system of oppression for everyday women.

It’s curious that MCain is not willing to tokenize himself by talking publically about his disability. Perhaps the stigma of disability is too strong and too internalized for him to come to terms with the idea that he himself is disabled – he sustained permanent injuries from his time as a prisoner of war and collects a disability pension from the Navy. Or, it’s likely that he (rightly) believes that disability is not as unified an identity as gender or race and so most people with a disability would not vote for him based on that identity. One thing is certain, as long as John McCain opposes policies that would free our people (like the Community Choice Act or universal health care), I won’t vote for him no matter how cripped out he is.

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