PhilosopherCrip

After tonight’s debate, I am brewing a post about the rhetoric of pity that has framed the public discussion of disability this presidential cycle.  It seemed to really come to a head tonight (and was deployed by BOTH candidates).  I need to get my paws on a transcript of the debate so I can accurately critique what was said.  It seems to me that poor Trig Palin’s mom has tokenized him from birth, but more on that later.

Until then (hopefully I’ll have time this weekend), I thought I’d share an email my sister forwarded to me that was written by a special education attorney in my home state of Connecticut.  I found it to be a thoughtful and illuminating analysis of Palin’s repeated claim to expertise about “special needs kids” because she happens to be the mother of an infant with Down Syndrome.  I think it does a good job of getting at some of the core issues at stake in this election, rather than getting hung up on the hollow sound bytes.

Trig Palin, the most famous (and most exploited) crip kid since Ashley X!

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Dear clients, friends, colleagues, and all of the above,

As we near the Presidential election in just three weeks, I have been asked by many of you to comment on my thoughts on Gov. Palin and what she can and will do for special education students. As an attorney whose practice focuses exclusively on the representation of children with disabilities, I always investigate candidates’ positions and records on this very critical moral and financial issue. One of my clients recently suggested that I share with others what I have learned, and so here it is.

When Gov. Palin first came to my attention, I was, as I am sure all of you who care about this issue, intrigued to have someone on the national platform who talks about children with special needs. Since hearing her say this repeatedly in speeches, I have been waiting, and waiting, to hear some specifics on special education reform. Most of all, I want to know what her stance is on the IDEA, the federal statute that governs special education. The IDEA is up for reauthorization by Congress in 2010, and it is crucial that it reflect the policies and funding structure necessary to protect and appropriately educate our children with disabilities. I needed to know what Gov. Palin thinks about the future of special education legislation in this country.

I know where the other three on the tickets stand; Senators Obama and Biden have issued position statements on the IDEA to various parent groups, strongly supporting full funding for the IDEA and the rights of children with disabilities and their parents. The Obama-Biden website has a direct link to the ticket’s position on disabilities. Senator McCain’s website does not have such a link and neither he nor Palin have provided those positions on the IDEA to parent advocacy groups. Senator McCain does have a supportive position on the ADA (Americans with Disabilities Act) which has been published. I was, however, extremely disappointed in his discussion on the Senate floor regarding the Reauthorization of the IDEA 2004, in which he expressed his concerns that parents of children with disabilities who have to sue to secure appropriate services for their children under the Statute and win against districts shouldn’t have their attorneys’ fees covered. This is not just a matter of self-interest for me;=2 0it is the difference between families, especially poor families, being able to vindicate their civil rights or not. But I knew those things, I did not know where Palin stood, and I wanted to find out.

Having waited for some specifics from her on just how she is going to be an advocate for children with special needs in the White House, I finally got close. In her recent interview with Greta Van Susteren on Fox News, she was asked what her position is. While never mentioning the IDEA at all or what needs to be changed, kept, or fixed in it, she stated that the issue that needs to be addressed is “equal access” for children with special needs.

EQUAL ACCESS? Seriously? We HAVE equal access, that is what the original version of the Statute fought for in the early 70s, when children with disabilities were literally prohibited from attending our public schools. Equal access is so far in the minority of what needs to be addressed in special education I hardly know where to begin. Our problems are not that children with disabilities aren’t allowed into the buildings; our problem is what happens when they get there! What about a Free and Appropriate Public Education? What about “meaningful educational benefit?” What about giving children with special needs the tools to thrive and prosper and be fully independent adults, which is what the IDEA now stands for? We are decades fro m equal access being the key question, and apparently Gov. Palin is not aware of that fact.

Now, you might say “well, Jen, I am a parent of a child with special needs and I didn’t know that either.” Okay, my response: “are you running for Vice President of the United States? Are you telling the nation that you would see yourself as the voice for those children within the federal government? If you were, do you think you might have looked into it a little bit?”

It is not terribly surprising to me that Gov. Palin’s views on this are so far outdated. I have traveled to Alaska to give a speech to parents and professionals on the subject of the rights of children with special needs, in particular children with autism spectrum disorders. I was stunned by how far behind the State was from the vast majority of the rest of the country on the education of children with disabilities. Perhaps, for Alaskans, “equal access” IS the problem, but it is certainly not the case in Connecticut or most of the rest of the country. I am in regular contact with a colleague of mine who is a Parents’ attorney in Alaska, who has had to fight tooth and nail for children with special needs in Alaska simply to secure them the most basic of services that we take for granted here. I for one do not want the rest of the country to use Alaska’s system of educating our most vulnerable children as20a paradigm.

Okay, yes, you all know I’m a liberal…but that’s one of the reasons that I chose to get into the field of representing children with special needs, because I believe in my heart that this last bastion of civil rights is absolutely critical to fight. We need major fixes in our special education system, and if you think that who is in the White House does not effect you on this issue, you couldn’t be more wrong. IT MATTERS. It matters in terms of funding and at least as, if not more, importantly, enforcement. Our IDEA enforcement, even in States like CT where we have zealous advocacy, is woefully inadequate. School districts routinely violate the procedural and substantive rights of children and parents and only in a small fraction of cases are they taken to task for it. It also matters because the next President will have at least a few Supreme Court appointments to make. We have had more decisions from the United States Supreme Court in the area of special education law in the last few years than we had for decades. Those decisions have tremendous impact on whether parents have the right to have proper evaluations done for their children, how and when parents can exercise their rights under the IDEA, who has the burden of proof in Due Process Hearings, and a myriad of other issues which directly impact our children with special needs.

Whether we properly educate and embrace our children w ith disabilities is crucial to the future of this country, as the cost of NOT doing so will be far larger than the cost of doing so…leaving out the fact that it happens to also be the right thing to do in a great society. This issue should be front and center for any candidate for the White House, and I write to let you know that, at least as far as Gov. Palin is concerned, it has been an opportunity not only missed, but frighteningly misunderstood. It does not bode well for her, for us, or most importantly, for the children we love who need and deserve better in an “advocate in the White House.”

I will be casting my vote on November 4th for Obama-Biden, and I hope you will join me. They and their party have been on the side of children with special needs historically, and they will be on their side in the future. As our economy implodes and State and local educational budgets tighten, if we do not turn this around now, I fear that we will, once again, be fighting only for “equal access” for our kids. That is unacceptable to me.

Finally, for any of our more conservative clients who I may have offended, my apologies; I respect your views even if I disagree with them. However, to calm your concerns, Attorney Dana Jonson and I have convened a Personnel Board consisting of the two of us, which has investigated the matter and determined that you continue to have excellent legal representation.0

Thanks for reading, please feel free to forward this email to any and all people you know who care about the future of special education in this country.

Best, Jennifer Laviano
The Law Offices of Jennifer Laviano, LLC
Sherman, CT

With the fierce primary battle between Barack Obama and Hillary Clinton and today’s announcement of McCain’s running mate Sarah Palin, this presidential election has been and will continue to be thick with identity politics. That is, individual members of historically marginalized groups are finally at the point of sharing real power in our country and other members of those same groups are taking notice and often voting according to that shared identity. Being a member of a marginalized group, I can appreciate the desire to vote according to that identity.

I absolutely believe that other folks with highly visible physical differences (like my dwarfism) and mobility disabilities (like my use of a power chair) understand a part of “what it’s like to be me” in ways that an able bodied person never could. Close friends and family have a strong sense of empathy and do feel my outrage or pain when they are present as I am being marginalized or ridiculed, but they do not know what it’s like to live every moment of your life with such marginalization or ridicule right around the corner. For those that are close to me, their empathetic suffering is a temporary condition.

So it is that I understand that even complete strangers who are genuine members of a marginalized group can profoundly and uniquely understand each other’s lived experience in some ways (but CERTAINLY not all ways). Because of this feeling that other members of our group “get it” just because they share this identity, it’s easy to want to support them in their political ambitions. We trust people like ourselves more easily and we see their success as intimately bound up with our success. That is why people of color and women came out in droves this year to support Barack and Hillary, respectively.

However, if we were to practice identity politics in a completely uncritical way, we run the risk of tokenizing ourselves. In fact, I believe this trap is what John McCain is betting on in choosing a female Veep today.

When someone is tokenized, they are deliberately placed in a social or political position that gives the appearance of inclusiveness. In other words, it is a dominant group’s attempt to satiate a subjugated group by throwing them a bone. A tokenized person with a disability in a mainstream classroom provides ammunition for a school board to claim that they are not discriminatory by segregating everyone else in a “special” education back room, “But look! We are inclusive where that kind of thing is appropriate!”

As voters, if we vote for someone just because they superficially share our marginalized identity, even if they support policies that strike directly against our interests, we tokenize that candidate. Sarah Palin has the biology of a woman, but the troubling brand of fiercely conservative politics that she shares with John McCain does nothing to help the ordinary working class American woman, who is trying to make good amidst a foreign and domestic crisis. Conservatism does nothing but preserve the status quo, which is largely a system of oppression for everyday women.

It’s curious that MCain is not willing to tokenize himself by talking publically about his disability. Perhaps the stigma of disability is too strong and too internalized for him to come to terms with the idea that he himself is disabled – he sustained permanent injuries from his time as a prisoner of war and collects a disability pension from the Navy. Or, it’s likely that he (rightly) believes that disability is not as unified an identity as gender or race and so most people with a disability would not vote for him based on that identity. One thing is certain, as long as John McCain opposes policies that would free our people (like the Community Choice Act or universal health care), I won’t vote for him no matter how cripped out he is.