Jerry Lewis the Humanitarian? Jerry Lewis Vs. Peter Singer
Jan 19

In Michigan, it snows in the winter. I knew this when I moved, but didn’t think it could be any worse than CT’s “Nor’easters”. This week, it dropped to negative teens at night (negative 20’s with windchill) and snowed at least a few centimeters every single day. This is all a round about way of saying that I did something kind of rare and took the time to watch a DVD today because I was snowed in at my girlfriend’s apartment. We watched Last King of Scotland, which is hardly a date movie with its very graphic violence. However, we aren’t exactly like many couples and so it fit our tastes.

It is the true story of Ugandan dictator Idi Amin’s brutal regime that caused the deaths of over 300,000 of his own people. One of the striking parts of the story was that these deaths were not a part of a systematic racial cleansing per se, but were the killings of the factions of his political opponents. Amin’s warped psychology justified this violence in the name of stability, because his was one of the first African governments that were completely independent of colonial rule. His was a message of black power, unity, independence, and pride. The unified stability he sought was a response to hundreds of years of racist colonial oppression and exploitation. These ends were not themselves horrifying and could, in fact, be seen as a very good consequence for the people of that nation. After all, independence from colonial power is the same end that our country’s founders were aiming for during the war that created our nation.

Of course, the scope and nature of the violence visited upon his people was outrageous and not at all justifiable by this end. As the movie portrays, many of the killings were the executions of unarmed civilians, not war casualties. Amin was no patriot but a brutal murderer who was drunk with his own power. His absolute commitment to an ends that was not altogether morally bankrupt brought him to the use of means that are among some of the most horrific in history.

Also, Amin is not alone in his brutalities. History is ripe with examples of governments bringing about unthinkable tragedy in these ways. We are often quick to point at the Nazis or the Communists, but even our own government used such logic as it stood alone as the only entity to ever unleash the devastation of a nuclear weapon. Perhaps we may even look to the contemporary torture of terrorism suspects at Gitmo as an example of justifying violence and ignoring basic human rights in the name of a seemingly beneficial ends.

Perhaps I should start using this pattern of thinking as an explanation when I find myself discussing Jerry Lewis and his many offenses. One of the stock responses I get is “i understand why YOU don’t want to be pitied, but he has raised a lot of money to conduct research that will cure people who don’t want to suffer with MD.” Of course, I could and probably should challenge the notion that a medical cure is more desirable than a social one. However, this may be a much harder line of reasoning for someone to follow who has been so deeply socialized to believe that pity is an appropriate and virtuous response to disability. Instead, it may be better to really latch on to the deeply bigoted statements Lewis has made, and point out that the ends of funding for research cannot possibly justify the harms he visits upon the crip community with his very public words and attitudes.

Now, this is not to say that Lewis can be justifiably compared to a murderer like Amin in every way.  Surely, the harm Lewis does can not compare in scope.  Arguably, bigoted attitudes like his lead to the incarceration, abuse, and untimely death of thousands of people with disabilities in nursing homes, institutions, and the like.  Yet, he cannot be held directly responsible as the primary cause of this outrage, because he is a washed up comic, not the head of a government.

However, the means-ends reasoning that people use to defend this hack is quite similar:  “But what does the money go toward?” . . . “Doesn’t the money he raises help children?” . . . etc. etc.   My question is, what ends are good enough that the disability community should be asked to tolerate this man when he says in an article he wrote for Parade magazine that wheelchair users “just have to learn to try to be good at being a half a person?”  What amount of money is worth awarding a humanitarian award to someone who says on national TV, immediately after the passage of the ADA making employment discrimination against crips illegal, that people with disabilities “cannot go into the workplace. There’s nothing they can do?”  He may not be a dictator, but millions of people watch Jerry and are “touched” by his words and cannot understand why we can’t look past his old fashioned views because he has done so much good.  These supposedly good ends cannot be justified by the means of promoting the most basic element of ableism that keeps us as second class citizens almost 2 decades after the passage of ADA, pity.  I couldn’t possibly come up with the words that link pity with our oppression and marginalization better than Jerry did himself in a TV interview in 2001: “Pity? You don’t want to be pitied because you’re a cripple in a wheelchair? Stay in your house!”

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9 Responses to “MDA Telethon: Do the ends justify the means?”

  1. Darci Says:

    Joe, it seems to me that there’s an additional issue in this post that you may not have made explicit (at least in this particular post… and if you did and i read over it, I apologize).
    I would wager that the negative reinforcement of stereotypes about people with disabilities actually hinders the fundraising, medical and social advancements. i.e., the focus upon pity is outside of the actual end, and misdiagnoses the real problem. As such, it causes people to think of disabilities, and disabilities activism, only in the context of people to be pitied, which is unlikely to result in any sort of true progress. I would question what sort of funds could be generated in the absence of stereotypes about disabilities; I actually think they’d be higher than Jerry’s once a year telethon.
    Furthermore, it (i.e. Jerry’s methodology) seems to misplace the funding focus on “pitiable” disabilities. This seems to be outside of the greater good.
    Our motivations for funding cures, or for creating social reform, shouldn’t focus on which conditions create the highest levels of pity; the problem is so much deeper (in more than one sense) than that, and throwing a few thousand dollars a year isn’t going to fix it. As long as we view the problem through the Lewis lens, the “cure” will only perpetuate the problem.

  2. admin Says:

    Well Darci, I certainly agree that the means of pity misdiagnoses the problem (frames it as purely medical rather than social) and are contrary to the end of the good of people with disabilities. Essentially, it gets the ends wrong as well as the means. I kind of recognize then with the sentences “Of course, I could and probably should challenge the notion that a medical cure is more desirable than a social one. However, this may be a much harder line of reasoning for someone to follow who has been so deeply socialized to believe that pity is an appropriate and virtuous response to disability.” Basically, this post an attempt to make an end run around arguments about the more fundamental questions of what the ends or good of the disability should look like. It sets aside that complex question in favor of a simpler argument that may be more effective in “sound byte” form.

  3. admin Says:

    Oh! one more thing… if I were to seriously consider the ends rather than focus on the means, it would operate entirely outside of a fundraising model. I don’t think we can solve the problems of disability with fundraising any more than we can solve racism or sexism with fundraising… we need justice not charity and the pity question is tightly bound to this.

  4. Some ableism coverage on the net « Ableism and Ability Ethics and Governance Says:

    [...] and development of Ableism Ethics and Governance on January 22, 2009 at 3:22 am 1)here 2) here 3) here 4) [...]

  5. Darci Says:

    I think that’s part of the point that I was trying to get to (i actually had a lot to say, and i got excited, so i lost my ability to rein it all in and say it all as concisely as I wanted)… that in focusing on using pity to fundraise, the movement would be hindered b/c advancements would surround and be dependent upon fundraisers, etc; it’d become a fundraising issue, in lieu of a broader social issue.

    I think Lewis’ methodology perpetuates the idea that disabilities are a fundraising type issue, which is not the case; as such the social perception is skewed. it seems that it becomes a circular issue.

    Once again, i’m not sure if i’m gettting everything out, or saying it all clearly, but I’m getting tired and can’t see / think straight…..

    Basically, just trying to say that I agree with you and i think you’re on to something….

  6. admin Says:

    the second comment was much more clear! yes indeed… thank you for the encouragement!

  7. michael flynn Says:

    What would labor day be without the Jerry Lewis MDA telethon? Due to the lousy economy, a mere 60 million was raised,maybe alittle more. I give the man credit for his determination each year. Sure, he says stupid things,don’t we all? I can only speculate that once Mr. Lewis passes, we won’t see the telethon anymore. I think his presence, perhaps to the MDAs dismay,keeps us tuning in each year. God Bless you Jerry!

  8. http://increaseenhanceandconquer.tumblr.com/ Says:

    What do you think Gary Busey

  9. Frannazef Says:

    I recently identified your current blog post and have been recently reading through alongside. I discovered some weird remarks, however generally I merely accept the style the various other rewiewers are creating. Discovering countless wonderfulgreat critiques on this blog, I used to be thinking that we should also connect and advise you that I truly appreciated reading this post. And so i consider this might make my initial comment: “I think you have built a few really interesting factors. Not necessarily many people would really consider it the method that you simply does. I am just truly pleased that there are so much relating to this issue that were uncovered so you did it consequently nicely, with so much course!inch

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